ALS has devastated the Northeimer and Mickley families.
We are a fALS family, which means we have a genetic link to this horrific disease. We walk in memory of my Grandmother Charlotte, my Father Mike, My Uncle Phil, and my Uncle Carl.......All of whom WON their fight against ALS and earned their wings.
We are ALS warriors and advocates who will stop at nothing in our lifetime to raise awareness and funds to advocate for all PALS and CALS and to help support those institutions and associations dedicated to finding a treatment and cure.
Will you help us out?......We Have An Awful Lot To Live For!
WHY WE NEED YOUR HELP
Every 90 minutes a person in this country is diagnosed with ALS and every 90 minutes another person will lose their battle against this disease. ALS occurs throughout the world with no racial, ethnic, or socioeconomic boundaries.
90% of ALS cases are Sporadic, occurring randomly, while 10% are Familial, meaning there is that genetic link.
That’s why we’re participating in the Walk to Defeat ALS. To bring hope. To raise awareness. To provide resources and services to families free of charge. To help unlock the mystery of ALS and find the key to treatments a cure. Will you join us?
ABOUT ALS
Amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of a person with ALS averages 2 to 5 years from the time of diagnosis.
For our families mutation, which is called SOD1, it is a particularly aggressive form with life expectancy of less than a year after diagnosis.
ALS can strike anyone. Presently there is no known cause, viable treatment, or cure for the disease, yet it still costs loved ones an average of $250,000 a year to provide the care people living with ALS and their families need. Join the movement to provide help and hope today!
