Thank you for taking the time to donate and to read this story.
Michael (Max to many) first experienced symptoms of ALS in the fall of 2015 and received an official diagnosis in June of 2017. His motto was "Do as much as you can, for as long as you can!", and that is exactly what he did!
Michael had a fantastic career as a Film Publicist working on more than 350 films, many with Disney. He was promoting the documentary "I'll Push You" when he first realized the symptoms he was experiencing were that of ALS.
An essay that he wrote on California’s End of Life Option Act from a patient’s perspective was published in The Annals of Internal Medicine in September of 2018 and he wrote a follow up article in April of 2019. He was interviewed by The San Diego Union Tribune in September 2018 about his essay, his career, and living with ALS. He also gave a talk to a large gathering of Doctors working on finding a cure for his disease so they could have a face to remind them who they are working so hard to help.
Michael and Steve Becvar the Executive Director of the San Diego Chapter of the ALS Association, met with Congressman Scott Peters in October 2018 and discussed the ALS Disability Insurance Access Act which aims to eliminate the five month waiting period for SSDI benefits for people with ALS.
Michael became a champion and friend of the San Diego Chapter of the ALS Association after all the help and guidance he received. They never hesitated to help get something for him that could help ease the struggle of daily life with ALS. He helped raise money and awareness for the Chapter and Walk by appearing alongside Steve Becvar and Eric Andrews members of the executive team on KUSI News in San Diego.
He decided to document on film living with ALS and bring positive awareness to Californias End of Life Option Act.
Michael decided March 1st, 2019 to exercise his right to end his life, as he put it "I’m not fighting ALS, I'm simply absorbing the blows." He was looked after by his beloved family and dear friends.
My hope for you is that you follow Michael's incredible example of the human spirit’s strength and wish for you to take action each and every day, be a part of Michael’s incredible legacy by donating any amount you can and join us for the walk!
Thank you for helping us reach our fundraising goal! Together we can make a difference in the lives of those affected by ALS. Our team is committed to raising money to support people in our community with ALS and spread awareness of the urgency to find treatments and a cure. Please consider joining our team in the Walk toDefeat ALS® or choose a team member from the list and donate to our cause.
Every 90 minutes a person in this country is diagnosed with ALS and every 90 minutes another person will lose their battle against this disease. ALS occurs throughout the world with no racial, ethnic, or socioeconomic boundaries.
ALS can strike anyone. Presently there is no known cause of the disease, yet it still costs loved ones an average of $250,000 a year to provide the care people living with ALS and their families need. Join the movement to provide help and hope today!