Welcome to our team page! Celebrating Sydney was organized in loving memory of Sydney Shank.
Thank you for helping us reach our fund raising goal! Together we can make a difference in the lives of those affected by Lou Gehrig’s Disease. Our team is committed to raising money to support people in our community with ALS and spread awareness of the urgency to find treatment and a cure. Please consider joining our team in the Walk to Defeat ALS® or choose a team member from the list and donate to our cause. If you want to join the team, you can walk in person or be a virtual walker. The 5K Walk event will be held on October 15th this year at Mission Bay Park, De Anza Cove.
Why We Need Your Help
Often referred to as Lou Gehrig's Disease, amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of an ALS patient averages 2 to 5 years from the time of diagnosis.
ALS occurs throughout the world with no racial, ethnic, or socioeconomic boundaries. Presently there is no known cause of the disease though support is bringing researchers closer to an answer.
WHAT IS ALS?
Amyotrophic lateral sclerosis is a progressive neurodegenerative disease that is 100% fatal
ALS affects the nerve cells in the brain and the spinal cord
ALS usually striked people between the ages of 40 and 70
Approximately 20,000 Americans are living with ALS at any given time
5,000 people are diagnosed per year
10% of ALS cases are familial (inherited through mutated gene)
90% of ALS cases are sporadic (occur without family history)
2-5 years is the average life expectancy after diagnoses
Every 90 minutes, someone is diagnosed and someone passes away
The estimated out-of-pocket cost for caring for a person with ALS is $250,000
The FDA approved Radicava, the first new treatment for ALS in more than 20 years, in May of 2017
Prior to the discovery of Radicava, Rilozule, known to extend survival, was the other other available treatment for persons coping with ALS
The cost to develop a drug to slow or stop the progression of ALS is around $2 Billion
There are zero effective treaments for ALS
ALS is difficult to diagnosed and is often done so by ruling out other diseases, which may take months or years.
Military veterans are twice as likely to get ALS
ALS affects veterans who served in peace time and war
The Department of Defense is one of the largest funders of ALS research
Please consider helping us fight this disease. Thank you so much.