ALS Ice Bucket Challenge Progress

 

Chapter Highlights

Adapt Functional Movement Center  

The IONIS Hope Scholarship

Great news for our PALS! On April 8, Ionis Pharmaceuticals, Inc. announced that it has established a $25,000 scholarship to help ALS patients in the greater San Diego area participate in a range of physical and mental wellness programs that offer an integrative approach for overcoming the challenges of disability.

Recipients of this Ionis Hope Scholarship can participate in group classes, massage therapy, meditation, or functional movement therapy, through Adapt Functional Movement Center located in Carlsbad. During the COVID-19 pandemic, Adapt is offering its full range of therapy for patients and their caregivers via live, individualized online video sessions. 

PALS interested in learning more about the Ionis Hope Scholarship can reach out to our ALS Association Greater San Diego Chapter directly at sdweb@alsasd.org or (858) 271-5547. Thank you Ionis and Adapt for your generosity and willingness to help people affected by ALS live longer, healthier lives! Read the full press release here.


 

 Hospital Bed

 

Hospital beds delivered to Sharp Grossmont Hospital

East County Magazine: April 26, 2020 (La Mesa) – As part of its response to serve the San Diego community during the coronavirus pandemic, the ALS Association Greater San Diego Chapter recently loaned six, fully-electric hospital beds to Sharp Grossmont Hospital in La Mesa. 

“In response to a request for assistance from the Sharp HealthCare Foundation, we replied with an offer to share resources from our equipment storage unit,” said Steve Becvar, Executive Director, ALS Association Greater San Diego Chapter. “The response we received to our offer was beds. During these uncharted and unusual times, we are happy and willing to do whatever we can to help our community.” 

“We are grateful for the generosity of the ALS Association Greater San Diego Chapter and for their offer of beds that will be used if needed,” said Bill Littlejohn, Senior Vice President and CEO, Sharp HealthCare Foundation. “Thanks to the ALS Chapter for answering our call for help and their assistance in helping us remain prepared to be ready to serve our patients and the community.” 

Becvar said the loaning of hospital beds to Sharp Grossmont Hospital was “the right thing to do” and the hospital can keep the beds for as long as necessary or needed during this unprecedented COVID-19 period of time.

Click here for the full news release


Meal Program Volunteers

Meal Program
 

Local ALS families receiving fresh food and care packages

During this COVID-19 pandemic, many ALS families throughout San Diego are receiving fresh food and care packages with assistance from Adapt Functional Movement Center, the O’side Kitchen Collaborative, and The ALS Association Greater San Diego Chapter.

For more than 5 weeks, Adapt Functional Movement Center in Carlsbad has been compiling and delivering packages with essentials like food, water, and supplies for people in need, including many local families affected by ALS. All items are packaged with gloves, sanitized, and delivered by Adapt team members in hazmat suits, nitrile gloves (changed after each delivery), and masks. Packages are left at the doorstep to maintain physical and social distance.

From an ALS recipient, courtesy of the package from Adapt: “Thank you so much for always thinking about us and taking care of our community. Thank you for caring, for being you, and for being our friends!”

The O’side Kitchen Collaborative is gathering thousands of pounds of food donations from Oceanside restaurants and then preparing chef-quality packaged meals for delivery. These meals are helping to relieve those affected by the Covid-19 pandemic and are picked up and delivered to families by local non-profit organizations like us at The ALS Association Greater San Diego Chapter. Pictured: An additional thank you to ALS volunteers Rebecca Cole and Juan Cardenas, and chapter board member Cecilia Cardenas for helping to deliver these meals each Friday. Also pictured is a heartfelt handwritten message from Cecilia’s nine year old son – he is contributing a special message for each package!

From an ALS recipient, courtesy of the OKC package: “Please let OKC and your entire team at the ALS Greater San Diego Chapter know how much we appreciated the hot meal delivered to us last week, it was delicious! Thank you so much for thinking of us!”

Our sincerest appreciation to Adapt Functional Movement Center, the O’side Kitchen Collaborative, our care services team, and all our wonderful volunteers for their unrelenting efforts to support people, caretakers, and families affected by ALS! 


Officer.JPG 

Our Walk date is confirmed for Sunday October 18, 2020

As we’ve been posting through our social media channels, we're moving full speed ahead with plans for this year's Greater San Diego Walk to Defeat ALS on October 18, 2020.

Time will tell what impact COVID-19 has on our Walk and what adjustments our community might have to make but until then, our stance is that we have to keep going because “ALS doesn't stop so neither can we.” In order to sustain and grow these evolving efforts, generating resources is critical and we’re spending a lot of time ensuring the walk is both safe and successful regardless of circumstances. The dollars we raise from our Walk program are essential to drive the support we provide during the COVID-19 pandemic and beyond. 

You can get involved by: 

Again, we can’t thank you enough for your support.

We will be in touch soon, about what we can start doing together to make the 2020 Walk to Defeat ALS the best yet!


 

PALS at La Jolla Playhouse 

We're thankful for Giving Tuesday!

We are in awe of our generous donors rallying together to support our PALS and their families on #GivingTuesdayNow! No matter what your reason for giving to The ALS Association Greater San Diego Chapter, we want you to know that we appreciate it! We do not take for granted that our work would not be possible without supporters like you. As volunteers, donors, partners and friends, your giving spirit empowers us to serve PALS throughout the Greater San Diego area! 

If you missed #GivingTuesdayNow and you’d like to support The ALS Association Greater San Diego Chapter, it’s not too late! CLICK HERE to make a donation. Thank you for your support!